Wow.
I'm not sure what to say on this, except it's becoming a part of my daily life I have to deal with.
When you have always been healthy, maybe not perfect, but basically healthy, you don't realize what this is like. It is starting to take over everything in my life. Does it show on my face, I think it must?
Ever since I hurt my knew many months ago now, I have been in almost constant pain, some worse, some better, but it's always there.
After the surgery, I was hopeful that this would be the end of it, but then the Dr. diagnosed me with the dreaded osteo-arthritis in both of my knees.
I've started doing physical therapy, and both of my kneecaps are out of place. So I've begun taping them, per the therapists instructions, it's helping...a bit.
The thing is, it is really starting to hit me, that this is here to stay. This pain. I have to learn how to live with it somehow.
On top of all my other struggles, and as most of you know there are many, I've gone from a relatively healthy (albeit overweight) 40's mom, to a mom who is still overweight but in constant pain.
It nags at me. I get up from my desk at work, and have to stand, for just a second to make sure my knees are not going to give out on me.
Sometimes I can take the stairs as normal, sometimes I'm holding both rails and going down them, one at a time like a child.
This is starting to rock me to my core.
I'm trying so hard not to take pain pills, I am terribly afraid of being addicted to them, so I do without most of the time.
Pain, it's like parking problems in the city, you have to think about it all the time, how are you going to manage this, how are you going to manage that? I can't kneel down to weed, so I have to bend down.
I tried to give my kids a bath the other night, because I hadn't done it since the surgery.
When I knelt down as I've always done, I ended up yelling for hubby. By that point, I was in so much pain, I couldn't finish the bath, so from now on, no kneeling during baths.
I'm hoping PT will help. I am just at the beginning. But this is so scary. I don't know how I'm going to handle this long term. Being in pain constantly, put you in a bad mood.
Then I have to fake my bad mood out so the kidlets don't see it so much.
Hubby seems like he gets it, for a minute, but then he "forgets" and rolls his eyes when I say something about being in pain.
kI know deep down, he thinks I'm making this up, but damn it I'm not.
I'm the woman who got through 2 c-sections on just a few vicodins each. I don't do pain pills. I have always had a high pain tolerance.
But this, constant, nagging, sometimes barely there, sometimes so bad that I think cutting my leg off isn't such a bad option after all, is changing who I am inside.
My good friend, she has both MS and Lupus. She deals with chronic pain. She has a 2 year old, and is pregnant again. If she can do this, I can do this. She is the person I talk to about this, because no one seems to get how this wears on you, down to your very core.
I want to feel young again.
I want to be able to take care of my kids, without feeling pain while doing it.
I want someone to fucking get it.
I don't want someone to roll their eyes at me when I'm almost in tears already.
I'm strong, and things like this don't get me down, but today has been a hard day. My right knee has been throbbing all day. So I came home from work, and took a pain pill and tried to nap. When hubby came home, he jokingly said "wimp".
WIMP?????
Does he even realize how fucking bad that hurts my feelings???
Probably not, since I hold it in. I can't show my weak side to him anymore. I don't feel comfortable.
I want someone to understand me.
To understand that I really am strong, and that I'm doing the very best I can, and that I won't give up, I can't give up, I have kids to take care of.
But where is the person who will massage my hurts, and let me weep on their shoulder on a bad day?
Peace,
OC
OC - I am sorry you are hurting. I think our mind/body connections are strong and I am also a believer in alternative therapies.
ReplyDeleteSo if I were you I'd think about acupunture (which apparently I can't spell) look at your diet - Dr. Weil (google him) might have something on his website. Consider yoga.
And the serial single girl suggests take care of yourself - that is what everyone else is doing - one has to be their own best friend. Generosity, not selfishness starts there.
be well and take care-
janet
I'm so sorry you're in pain...what a rotten thing to deal with in addition to your emotional struggles right now.
ReplyDeleteLike mlc, I was going to suggest some alternative therapies like acupuncture and yoga. I don't know if a chiropractor can help with this, but it's worth looking into. Definitely look your diet and some supplements. I have a book called Prescription for Nutritional Healing that is a great reference.
And your husband is being a jerk...as men can be when we are functioning at less than 100%. I understand that you're not comfortable being vulnerable with him any more, but I think you need to lay down the law about negative comments in regards to your pain. Let him know that you wouldn't treat him that way and you expect the same courtesy from him. Not only is his behavior hurting your feelings and not helping your pain, it is only serving to drive that wedge further between you.
Your pregnant friend is a real trooper! Wow!
Well, you KNOW I understand. Me, the one with the cane!
ReplyDeleteAnd yes, it is so damn frustrating to watch people bobbing up and down and taking their beautiful, healthy knees for granted....
I hope the pt helps.
And you know, Bing, rolls her eyes at me too sometimes. I think it isn't so much that she doesn't believe how much pain I am in, but that it is frustrating for her as well....
And I wanted to apologize, Monica. In my e-mail to you, I misspelled your name and wrote Monika instead. I am so sorry. How rude. I have a dear friend in Chicago that I email a lot and her name is Monika...must have been reflex...again, I apologize!
I want to echo Earth Muffin in her advice on checking into alternative therapies, especially nutrition. My friend's mother and grandmother were both on meds for year to treat rheumatoid arthritis pain. When we were in grad school together (she was 24) she started with the intense pain and her doctor said the same to her. She refused to believe it and did an exclusion diet, and discovered that she is celiac. Her mother and grandmother are now off their arthritis meds as well having used this discovery to liberate them. I am not saying that this is your case, but there can be causes that you are not aware of. Hers was manifesting as swollen knuckles and hands that could not work anymore. Now, a gram of gluten and she's in bed for two days.
ReplyDeleteYour post made me cry. I am so sorry, OC.
Please be well today. One day at a time.
You know this: you are strong; you are doing the best you can. You will prevail. You deserve to be loved. Do you know Moonbeam McQueen's blogs? She has one on Fibromyalgia that is really splendid, and you might find it strengthens you. Similarly, yours might strengthen her. And you both strengthen me. Thank you for your honesty. Here's hers: http://fibromyowgia.wordpress.com/
ReplyDeleteA littl empathy from the man would have been nice. I think I would have given him both barrels if I were you. Sounds like lots of good advice here - try the non-traditional med. treatment- the traditional doesn't seem to be doing that much for ya.
ReplyDeleteXO - BC
MLC gives good advice. I also recommend reiki and reflexology, might be hard to find in your area, but I found a great reflexologist here in Pueblo, so it can be done. Also, think about how your emotions and your current life situation might affect your pain level.
ReplyDeleteG. deals with chronic pain from her spinal injury when she was in the Army. They gave her 10 years before she was in a wheelchair, she's now going on 17. She is in pain nearly all the time and rarely takes meds. I can't comprehend it, but always try to be as supportive as I can, although sometimes that means NOT paying much attention to her grunts and groans.
I am sorry your husband let out that comment. I've seen G have to CRAWL from the car to the house because her legs just wouldn't hold her up. No one who has to deal with chronic pain is a wimp.
So there.
GG
First off, may I kick his ass on your behalf?
ReplyDeleteMy mom has had chronic and debilitating pain for 20 years. I don't know how she copes.
But, I also see that she is depressed, as many people get when they can't do what they normally do and have to deal with pain 24/7.
I hope you can look at some homeopathic as well as western medicine alternatives to relieve the pain. And, really, so what if you're addicted to a pain pill when nothing else helps?
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ReplyDeleteI feel for you. Big time.
ReplyDeleteAnd I totally understand. Mine is my back. Nobody can see that it hurts but some mornings, I hurt so much I can't even stand up straight. I have stretches I do and I think it sucks that I can't even bend down and touch the ground anymore.
It took a long time and some experimental therapy and I still hurt although not as much. Time is your friend. Time, therapy and ibuprophen. Sigh. I hate medicine.
No advice. Just lots of empathy.
Hey OC - I'm really sorry to hear about all the discomfort you are feeling. I am really hoping that some of the therapies suggested here can help you out.There's a lot of adjectives I can use to describe you and wimp is definitely not one of them.
ReplyDeleteI'm so sorry you are in physical pain to boot.
ReplyDeleteI understand your reluctance to take and then depend on the pain meds.
My thoughts are with you.
Just checking in on you today, OC. It is almost FRIDAY!
ReplyDeleteSmile--